Diseases, Conditions & Concerns / Question
Published: May 7, 2002
Dear TeenHealthFX,
I was diagnosed with Turner Syndrome. Will I die at an early age if I don't take hormone therapy? Can you direct me to some Turner Syndrome websites? Thanks.
Signed: Turner Syndrome
Dear Turner Syndrome,
For all our readers, Turner syndrome is a chromosomal condition that exclusively affects about one in every 2,500 females. It occurs when there is a complete or partial absence of one of the two X chromosomes normally found in women. It can be diagnosed with a blood test called a karyotype, which analyzes the chromosomal makeup of the individual. What causes Turner syndrome is not known and it appears to be a random event that can happen to anyone. There are no environmental or other stressors that play a role in the onset of the condition.
The most common characteristics of Turner syndrome include short stature and a lack of ovarian development, which can lead to failure to develop secondary sexual characteristics during adolescents and infertility as adults. Individuals with Turner syndrome are also prone to heart problems, kidney problems and thyroid problems. While these conditions require good consistent medical care and management, they are not life threatening.
There is not cure for Turner syndrome, but there are many therapies that can minimize the symptoms. Growth hormone by itself or combined with a low dose of androgen is designed to improve growth rate and final adult height. Estrogen replacement therapy has been used to promote the development of secondary sexual characteristics and is important for maintaining good tissue and bone integrity.
It is important for you to understand that Turner syndrome is not a life threatening illness but that it does have to be carefully monitored by medical professionals. There is not much data available about the life expectancy of someone with Turner syndrome, but it is currently believed that with regular, competent medical care, a woman with Turner syndrome can lead a full productive life.
A good resource for Turner syndrome would be:
Turner Syndrome Society
14450 T.C. Jester,
800-365-9944
Another website you may want to check out is from the National Institute on Health.
Something you should consider is that your doctor could also be an excellent source of information. Not everyone who has Turner's syndrome experience the same difficulties. Your doctor will have the most knowledge about the particulars of your condition and will be able to answer your questions in greater detail.
Signed: TeenHealthFX
The highest Chlamydia rates occurred among women ages 15 to 19 and 20 to 24.
